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It was to be that we
would have to travel to St Mary's children’s hospital in
Manchester a few days later to get a more thorough scan. Lindsey
also needed to have an amnio * to ascertain if any further
complications were apparent. This was carried out within a week
and showed everything else was fine. If things showed that there
were more problems, I dread to think what they would have advised.
* AMNIOCENTESIS: Procedure used in
prenatal diagnosis to obtain amniotic fluid which can be used for
genetic and other diagnostic tests. Informally called an "amnio."
We were desperate for more answers
on the many questions we had. The one big important question that
no one could ever answer was..."Would our baby survive?" Lindsey
trawled through the internet, typing "Diaphragmatic Hernia" into
possibly every search engine available. It's a natural reaction to
go surfing for info and we just wanted to find sites that would
fill us with hope and optimism. Along with some good sites were
some that we wished we'd never opened. Some gave lower survival
rates and filled us with fear. But we had to be realistic; our
baby had a serious condition. Our baby was due in 4 months time
and we wondered just what would happen at birth.
On our visit to
Manchester, the radiographer, Dr Russell was fantastic, putting
our minds at ease but again giving nothing away while scanning.
She told us again a similar 40% figure and drew us a diagram of a
Diaphragmatic Hernia. We expected this visit to tell us whether
baby would go full term and be born. To our delight and relief Dr
Russell saw no reason why baby shouldn't be born although she
could not predict the outcome. We left for home and waited the
long 4 months unknowing of what lay ahead. Our baby would have to
be born in St Mary's in order to go straight to intensive care at
birth.
Somehow we had to have a bit of
faith and in a time of need stuck regular prayers in. We have a
large family and many friends who proved invaluable in boosting
our spirits. Even the most unreligious of us said prayers for the
first time since primary school assembly. Because of the TV
program we took part in, we were known by friends of friends,
colleagues of families and total strangers in the local
supermarket. The hard part when being asked when baby was due and
knowing if it was a boy or girl. Sometimes we would tell them of
our diagnosis and sometimes we just didn't want to mention it. It
was often and understandably met with sympathy.
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