Homepage
20 Week Scan
Desperate for answers
Imogen is born
St Mary's Manchester
What a fighter
Successful operation
Neonatal Lancaster
What to expect
Contact Us
Our Blog
Useful sites

What a fighter
Mummy and Daddy sat side by side with Imogen for the rest of the day, talking to her and encouraging her just to persevere. At the end of the day, we were amazed that she was still here and maintaining her stable condition. Unbearably, we at some point made the decision to go to bed- albeit at a late hour. We didn’t want to sleep, fearing what news we may wake up to. We needn’t have worried, Imogen still put up a fight through the night.

And so it went on…for a little over 2 weeks, the same daily routine, with the occasional glimmer of improvement. Visits by family and friends would come and gave us a much needed encouragement, no-one really knowing how long we would be there or if they would have chance to visit again. Along the way, during the first 2 weeks we were advised by the doctors not to raise our hopes as Imogen may be stable but was not really gaining any progress.

 



Daddy reading to Imogen

 
  

After 10 days or so, we were told that Imogen would have to come off the high frequency ventilator as a prolonged period on it could cause damage to her lung and she had already been on it for too long. This method of ventilation is short but quick vents of oxygen as opposed to slow long vents as in our normal breathing pattern. The result was easily visible with Imogen’s chest vibrating before our eyes. Taking her off this and on to a conventional ventilator was a risk in itself. This procedure would mean being unhooked and plugged back into another taking precious time that could mean survival or not. On being hooked up to the new ventilator, it was also unknown territory as to how Imogen’s respiration would cope. Dr. Greenhough was the man responsible on the day and for him too was uncertainty.

To our delight, Imogen coped well with the procedure far better than her parents. To see her breathing pattern go from erratic to gentle respiration looked so much more comfortable and natural. Imogen was to stay on this ventilator for a further 3 months. Over the weekend, Imogen started to impress us on the new ventilator giving us fresh hopes. Her oxygen requirements were turned down as her saturations stayed reasonably high. We all had a good few days before a particularly bad night whereby Imogen hit a new low in health.

Back in our room, we were woken in the early hours by the nurse responsible for her care throughout the night. Through bleary eyes, we opened the door to be told that Imogen was far from well having had a very unstable night. We were advised to come and see her as she was not expected to pull through from this. We were absolutely inconsolable and at our lowest point of optimism since she was born. On seeing her, she looked no different to the previous evening but on seeing her figures on the monitor, we realised this was likely to be her last hours.

Imogen’s saturations were seriously low and back on maximum ventilation. Considering the amount of time she had been like this it was likely that should she by a miracle pull through, her brain may have been oxygen starved for too long. A nurse offered to get a big comfy chair and suggested we should have our first ever hold of her and let time take over. With a degree of reluctance we agreed. To this day, I don’t know what happened to the chair, but it never arrived. Who did arrive though were the morning doctors along with Dr. McKinnon. He suggested how well she had done and we had no choice but to agree. Imogen was now over two weeks old and had given us much more than first expected.

The doctor explained that should her heart stop, that he could massage her heart to revive her. Lindsey and I were both of the opinion that should this be the case then it was a sure sign of fate and that we would be grateful for our two weeks with her and to let her go. This was no easy decision. We are so glad that her heart never gave up. Another doctor who had spent time with her over the weekend was somewhat puzzled as to her sudden deterioration after such a good few days. It was decided that one last chest x-ray should be done but it was thought that this may not give us any hope.